Last year my friends and family participated in The Longest Day on June 20, for the first time. We’ve had a Walk team for the past six first walking in honor and then in memory of my husband Bill and wanted to find a way to involve more family and friends in the cause.
After struggling for five years with symptoms, Bill was diagnosed with Younger Onset Alzheimer’s when he was just 57. Our journey lasted a total of nine years and he died in 2010. He was my soul mate and my best buddy on so many adventures. We camped across Colorado and into Utah, South Dakota and Wyoming. We skied resorts from Vermont to New Hampshire to Colorado to Utah and the Tetons. Even in the midst of his disease, we pushed our limits in the search for new, challenging adventures. When the Alzheimer’s Association launched The Longest Day it seemed like the perfect way to continue to honor Bill’s legacy. Along with my friends and family, we took up activities that fit best with what we love to do. My younger sister in Durango rode her horses and her road bike trainer, my parents walked the streets of Vail during what was their anniversary trip, my sister Lynne walked the trails near her home in Lakewood, and my good friend Bob and I rode our mountain bikes near Boulder for four hours. All day, somewhere in the country, our team was doing something they love to raise money and awareness in memory of Bill. Thanks to our generous friends and family, we also raised nearly $1,700 for the Association.
Did I mention The Longest Day is scheduled to take place on the longest day of the year? The summer solstice occurs each year in June, this year on Friday, June 21. That means there are 16 hours of daylight from sunrise to sunset. The Alzheimer’s Association chose that day in recognition of caregivers, who like me spend every day from sunrise to sunset and into the night providing care for someone they love who is living with Alzheimer’s. The tagline for the event is “for them every day is the longest day, for you it’s just one” and it rings true. The Longest Day offers us an opportunity to give up one day to raise money, awareness and an understanding that this disease steals the person you love long before they die. We have to find effective treatments, we have to stop this disease before more spouses, children, grandchildren and friends lose people who mean so very much. Please consider forming a team this year and join us in 16 hours of doing whatever you love to help end Alzheimer’s.
Former caregiver for best friend, partner and husband Bill Perrin, Jr