Why I Walk to End Alzheimer’s – Adam’s Story

My mom, Nancy Leonard.
My mom, Nancy Leonard.

 

My mom, Nancy Leonard, died from Alzheimer’s disease on Valentine’s Day 2013. Her mother, Betty Stoffregen, is in a nursing home in Lubbock, Texas still struggling with this horrible disease. I am devoting my team’s cause to remember my mom and for the struggle that my grandmother goes through still today.

 

My mom was a school teacher in a small town in Eastern Colorado (Bethune School). She was such a wonderful person that always thought about others first and was truly dedicated to teaching her students. After her retirement in 2008 she moved to Dodge City, Kansas to take care of my grandmother with dementia. They then moved to Lubbock,Texas to be closer to family. To make a long story short, my mom, while taking care of her mother with dementia, began showing signs of Alzheimer’s disease.

She eventually moved in with me and my roommates in Denver in 2010. I was 28 years old. We did our best to take care of her through all of the ups and downs – through her going out for walks and getting lost and having the police bring her home – through her having hallucinations – through her ending up in a nursing home. We got to a point where we needed outside help. We hired a company to have a nurse come over every day while we were at work to take care of her. We eventually needed to move her to Brookshire House in late 2011. The staff and the facility were such a joy and wonder to work with they actually helped my mom get to the point where she could talk again. I was able to talk to her every day on the phone. However, the disease eventually progressed and she was moved into a secure section of the nursing home. She started to fall regularly, then she stopped eating, and the end result we all know…

My mom was 60 years old when she died. She had so much life to give. My mom was such an influential person in my life and having to go through this at such a young age on both our parts was a life changing event. I think that the Alzheimer’s Association is such a wonderful organization because people need to understand how this is going to affect their lives. This disease doesn’t care how old you are, it doesn’t care how it hurts the ones you love, it is relentless, it is ruthless, it is cruel. The only thing that you can do is be prepared and know what to expect. You have to be financially ready and of sound mind to even begin to handle something of this magnitude.

I miss my mom daily and only hope that we can come together as a human race so that nobody has to go through this again. That’s why I will be participating in this year’s Walk to End Alzheimer’s at Denver City Park on September 20, 2014.

 

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